Cuidadores familiares de pacientes sob cuidados paliativos no domicílio e hospital: revisão integrativa

Letícia  Valente Dias; Stefanie  Griebeler Oliveira; Berlanny Christina   de Carvalho Bezerra; Graziela  da Silva Schiller; Ernani Augusto a  Fraga da Fonsec

doi:10.5281/zenodo.7394991

Autores/as

Letícia Valente Dias Hospital Escola da Universidade Federal de Pelotas - EBSERH (Empresa Brasileira de Serviços Hospitalares https://orcid.org/0000-0002-5812-4079
Stefanie Griebeler Oliveira Universidade Federal de Pelotas, Pelotas, Rio Grande do Sul, Brasil https://orcid.org/0000-0002-8672-6907
Berlanny Christina de Carvalho Bezerra Universidade Federal de Pelotas, Pelotas, Rio Grande do Sul, Brasil https://orcid.org/0000-0001-6577-4435
Graziela da Silva Schiller Faculdade de Enfermagem da Universidade Federal de Pelotas (UFPEL) https://orcid.org/0000-0002-7431-4577
Ernani Augusto a Fraga da Fonsec Faculdade de Enfermagem da Universidade Federal de Pelotas (UFPEL) https://orcid.org/0000-0002-8067-6195

DOI:

https://doi.org/10.5281/zenodo.7394991

Palabras clave:

cuidados paliativos, cuidadores, serviços de assistência domiciliar, hospitais, enfermagem

Resumen

Objetivo: conhecer a produção científica de abordagem qualitativa sobre cuidadores familiares de pacientes sob cuidados paliativos no domicílio e hospital. Métodos: trata-se de uma revisão integrativa da literatura, realizada com os descritores de cuidado paliativo, cuidados paliativos na terminalidade da vida, cuidadores, cuidadores familiares, serviços de assistência domiciliar, hospitais e hospital, no MEDLINE/PubMed Central e Web of Science. Resultados: os cuidadores familiares de pacientes sob cuidados paliativos enfrentam diferentes realidades nos cenários do domicílio e do hospital. No ambiente hospitalar é preciso avançar para acolher melhor as pessoas com doenças que ameaçam a vida e suas famílias, uma vez que poucos aspectos positivos e benéficos foram discutidos. Já em ambiente domiciliar, muitos cuidadores relataram que não saberiam como fariam para lidar com as demandas de cuidado de uma pessoa e mostraram dificuldade em aceitar o papel de cuidador que lhe foi imposto. Conclusão: os cuidadores familiares não são o alvo principal das ações das equipes de saúde, sendo integrados aos cuidados paliativos muito mais como agentes para o alcance do bem-estar do doente.

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Biografía del autor/a

Letícia Valente Dias , Hospital Escola da Universidade Federal de Pelotas - EBSERH (Empresa Brasileira de Serviços Hospitalares

Enfermeira. Especialização em Atenção à Saúde Oncológica - Residência Multiprofissional no Hospital Escola (HE-UFPEL), mestrado em ciências (PPGENF – UFPEL). Hospital Escola da Universidade Federal de Pelotas - EBSERH (Empresa Brasileira de Serviços Hospitalares).

Stefanie Griebeler Oliveira, Universidade Federal de Pelotas, Pelotas, Rio Grande do Sul, Brasil

Enfermeira. Doutora em Enfermagem pela Universidade Federal do Rio Grande do Sul. Professora adjunta do Departamento de Enfermagem em Saúde Coletiva, Universidade Federal de Pelotas, Pelotas, Rio Grande do Sul, Brasil.

Berlanny Christina de Carvalho Bezerra, Universidade Federal de Pelotas, Pelotas, Rio Grande do Sul, Brasil

Enfermeira. Hospital Escola da Universidade Federal de Pelotas (HE – UFPEL)

Graziela da Silva Schiller , Faculdade de Enfermagem da Universidade Federal de Pelotas (UFPEL)

Acadêmica da Faculdade de Enfermagem da Universidade Federal de Pelotas (UFPEL). Bolsista PROBIC- FAPERGS

Ernani Augusto a Fraga da Fonsec, Faculdade de Enfermagem da Universidade Federal de Pelotas (UFPEL)

Acadêmico da Faculdade de Enfermagem da Universidade Federal de Pelotas (UFPEL), estagiário na Prefeitura Municipal de Pelotas

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