Cuidadores familiares de pacientes sob cuidados paliativos no domicílio e hospital: revisão integrativa

Letícia  Valente Dias; Stefanie  Griebeler Oliveira; Berlanny Christina   de Carvalho Bezerra; Graziela  da Silva Schiller; Ernani Augusto a  Fraga da Fonsec

doi:10.5281/zenodo.7394991

Authors

Letícia Valente Dias Hospital Escola da Universidade Federal de Pelotas - EBSERH (Empresa Brasileira de Serviços Hospitalares https://orcid.org/0000-0002-5812-4079
Stefanie Griebeler Oliveira Universidade Federal de Pelotas, Pelotas, Rio Grande do Sul, Brasil https://orcid.org/0000-0002-8672-6907
Berlanny Christina de Carvalho Bezerra Universidade Federal de Pelotas, Pelotas, Rio Grande do Sul, Brasil https://orcid.org/0000-0001-6577-4435
Graziela da Silva Schiller Faculdade de Enfermagem da Universidade Federal de Pelotas (UFPEL) https://orcid.org/0000-0002-7431-4577
Ernani Augusto a Fraga da Fonsec Faculdade de Enfermagem da Universidade Federal de Pelotas (UFPEL) https://orcid.org/0000-0002-8067-6195

DOI:

https://doi.org/10.5281/zenodo.7394991

Keywords:

palliative care, caregivers, home care services, hospitals, nursing

Abstract

Aim: to know the scientific production of a qualitative approach on family caregivers of patients under palliative care at home and in hospital. Methods: this is an integrative literature review, performed with descriptors palliative care, hospice care, caregivers, family caregivers, home care services, hospitals and hospital in the MEDLINE/PubMed Central and Web of Science. Results: family caregivers of patients under palliative care face different realities in the home and hospital settings. In hospital environments is necessary to advance in order to shelter better the individuals with diseases which put in danger their lives and families, once that only a few positive aspects and benefits were discussed. At home environment, several carers have reported that they would not know how to deal with the care demands of an individual and have shown difficulty in accepting the role of carer which was imposed. Conclusion: the family carers are not the main aim of actions of health teams, being integrated to palliative cares much more often as agents to obtain the wellbeing of the sick individual.

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Author Biographies

Letícia Valente Dias , Hospital Escola da Universidade Federal de Pelotas - EBSERH (Empresa Brasileira de Serviços Hospitalares

Enfermeira. Especialização em Atenção à Saúde Oncológica - Residência Multiprofissional no Hospital Escola (HE-UFPEL), mestrado em ciências (PPGENF – UFPEL). Hospital Escola da Universidade Federal de Pelotas - EBSERH (Empresa Brasileira de Serviços Hospitalares).

Stefanie Griebeler Oliveira, Universidade Federal de Pelotas, Pelotas, Rio Grande do Sul, Brasil

Enfermeira. Doutora em Enfermagem pela Universidade Federal do Rio Grande do Sul. Professora adjunta do Departamento de Enfermagem em Saúde Coletiva, Universidade Federal de Pelotas, Pelotas, Rio Grande do Sul, Brasil.

Berlanny Christina de Carvalho Bezerra, Universidade Federal de Pelotas, Pelotas, Rio Grande do Sul, Brasil

Enfermeira. Hospital Escola da Universidade Federal de Pelotas (HE – UFPEL)

Graziela da Silva Schiller , Faculdade de Enfermagem da Universidade Federal de Pelotas (UFPEL)

Acadêmica da Faculdade de Enfermagem da Universidade Federal de Pelotas (UFPEL). Bolsista PROBIC- FAPERGS

Ernani Augusto a Fraga da Fonsec, Faculdade de Enfermagem da Universidade Federal de Pelotas (UFPEL)

Acadêmico da Faculdade de Enfermagem da Universidade Federal de Pelotas (UFPEL), estagiário na Prefeitura Municipal de Pelotas

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